Thursday, October 31, 2013

"Breast Reconstruction" vs. "Boob Job"

This article is so perfectly written and so well-timed, I couldn't resist sharing.  FYI, I'm guilty of calling it a "free breast cancer boob job" too; it's the only part of having cancer that doesn't make me feel like I'm drowning.

I'm OK with my feelings of excitement toward it (even if there's a tiny bit of nervousness there too).

Wednesday, October 30, 2013

Wednesday

By this time next week, I'll be resting comfortably on my living room couch with my new boobs (and Jason!) to keep me company.  ONE WEEK!  I can finally answer "When's your surgery again?" with "Wednesday" and people won't ask for the actual date. I've been counting down for some time (sorry), and today got the following reminder on my phone:

My "event" is just a week away (as if I'd need the reminder, ha)!
Total side note: friends/family who are nurses, this is for you.  I had a second pre-op appointment on Monday to basically make sure I was alive before the doctor could sign off that I was good to go on surgery (my hemoglobin, kidney function and potassium levels are all normal). The doctor came in (not my regular), sat down and started going through my information: current medications, past surgeries etc.  Here's a rundown of the conversation:

Dr.: "What surgery are you having next week?"
Cassie: "Breast reconstruction."
Dr.: (pause) "Why are you having breast reconstruction?"
Cassie: "Because I had a bilateral mastectomy in June."
Dr.: "Why did you have the bilateral mastectomy?"
Cassie: "I was diagnosed with breast cancer."

Now, I'm not saying (at all) that it's the doctor's fault for asking these questions (although I wonder if she saw how old I was and thought maybe I was getting new boobs for fun?).  I'm curious though, why none of that medical history, pretty major stuff, wasn't on my chart?  Especially since I'd had the pre-op for the mastectomy at this same clinic?  They know I had once been taking pre-natal vitamins, but they skip adding cancer to the list?  C'mon!



Sunday, October 27, 2013

Ten

Ten days!  That's it, the time has finally come where I can say "surgery is next week!"  Jason and I met with Dr. Heinrich on Thursday to go over details of the surgery.  We talked about the size of implants I'll get (she'll test a few out before sewing me up to see what looks the most natural), what I can expect for pain (I'll be sore for a few days) and how it'll affect the progress I've made with my physical therapy (should actually make things better).  She said I'll be swollen for a few weeks, and I'll have to wear a compression bra of some sort to help with that.  I'll do whatever she says as long as it means I can get rid of these expanders! 

Yesssss!

Wednesday, October 23, 2013

Flashing

I know I've written about this before and it probably sounds like I'm complaining, but keeping in mind the fact that I'm hoping to help others, I'm writing this for more for educational purposes (I just love how I justify my complaining ha!).

I think the tamoxifen has finally kicked into high gear; the hot flashes have gotten a bit better (or is it the major drop in temperatures we've had the past week?) and my periods have been further spread out than usual.  I'm so happy the flashes have gotten better on their own; my oncologist had suggested I try an anti-depressant to keep them under control, and I politely declined. Not the right option for me - I'm not a fan of covering up side effects with another drug that could give me more/worse side effects. I still have them, just not as frequently and they're not as intense.

It's a good thing too, because when they're bad, all I can do to keep my sanity is stop what I'm doing, roll up my sleeves and pants, take off my shoes, and fan myself with something.  I'm sure my co-workers think I'm nuts, but it makes them tolerable.  Once the flash is over, I get a sweet case of the chills from my body trying to balance out the change in temperature.

I should be assigned my own weatherman, sheesh! Mantra: having flashes is better than having cancer. Repeat 400 times.

NBD: 14 days away!

Wednesday, October 16, 2013

Countdown

Three weeks to go; excited to get somewhat back to normal!  No more pain (I hope), no more rock-hugs to my friends/family, no more covering the lopsidedness with my hair. 

I am so beyond ready.

Sunday, October 13, 2013

Huge Success!

Yesterday a team of 12 awesome friends and family joined me in the Making Strides Against Breast Cancer walk.  It was a gorgeous, crisp fall day and the event had a great turn out! 

Here's a general breakdown on how much money was raised:
  • Personal Fundraising: $1,160
  • Team Fundraising: $1,950 (plus the contributions of three new team members who joined the day of)
  • Total raised by the 1,492 participants: $187,058
It's crazy how generous people are, and it's so great to know that the money is going to such a good cause.  Here are a couple snapshots taken from Julie (thank goodness she was on top of it because I certainly wasn't!):
Top: Team Schober! 
Bottom, left to right: my sister Erin and I; Jason's sticker; Julie (the photographer) and I
Great way to start a Saturday :)

NBD Countdown: 24 days!

Sunday, October 6, 2013

Weekend Wrap-Up

I know I rave and rave about how amazing my support system is (I know that I'm a very lucky girl) but I just can't stop when they've helped my Making Strides Against Breast Cancer team raise $1,270!  Wonderful job everyone!

I know I kind of left a teaser about my BRCA1 and BRCA2 test results (sorry!); they came back negative, which means the reason I got cancer was just the luck of the draw.  While it's a little unsettling to not have a definite answer why, it's wonderful to know that the women in my family are "safe" (I use quotes because they could be "lucky" and get random cancer too (knocking on wood that it never happens)) and I get a little peace of mind knowing that my risk of ovarian cancer isn't elevated.  It is what it is I guess; there's another gene test we can do, but it opens the Pandora's box of diseases I'd be susceptible to (they're diseases we can't watch for or prevent), and I'm not sure I want to carry that knowledge around every day.

Ashley made a great point that technology in this area of medicine is developing so quickly that it's not impossible there's another breast cancer-causing gene out there that no one has discovered yet.

Anyway, I hate to come back to this because it's probably so boring to read about, but I'm still having some pretty intense muscle pain.  The exercises my PT showed me a few weeks ago definitely stretch the muscles, but they're not taking away any of the pain/tightness.  I even went as far as calling my surgeon's office Friday afternoon to see if it's normal to feel this way.  Bad news: it is.  Good news: the nurse assured me I'd feel much better after New Boobs Day (31 days!).  I'm going to bench myself for the remaining 3 kickball games we have and really try to watch what I'm lifting, drink a ton of water, and continue stretching.  I can handle 31 days!

Tuesday, October 1, 2013

It's October!

I have to start out by saying how awesome my family, friends and coworkers are!  In less than a week we've blown past my initial fundraising goal of $250 and are sitting at $495 with 11 days to go!!  That's $5 short of half of the team goal of $1,000 I set! Your generosity is fantastic - keep spreading the word!

I attended my second breast cancer support group this afternoon, and I have to admit it was kind of a downer compared to the nutrition/fitness conversation we had last month.  Some of the ladies are having a really tough time and it makes me thankful that I have the love of so many people to help me get through everything. 

One thing that stuck with me (maybe it's because I'm new to being part of the breast cancer club) was that one of the group members said she has a hard time every October during Breast Cancer Awareness Month.  Everyone is so focused on it and somehow everything turns pink, and she has a hard time with the constant reminder of her experience.  I guess I never looked at it that way, but I get her point of view.  I feel like it's a month for people to be more active for the cause, donate a little and maybe reach out and help someone who may be battling the disease. 

As I left the meeting, I noticed I had a message from Ashley (my gene counselor) at the Breast Center.  (I was in the Breast Cancer suite when she called me - wish I would've bumped into her!)  She left a message saying she has "good news" and that I should call her when I can.  It was already after hours so I'll call her back tomorrow, but I'm trying to decide what her good news is.  Here's how I see it:

  1. I have a mutated BRCA1 or BRCA2 gene that caused me to have breast cancer.  In this scenario, I can have my mom and/or dad get tested and from there, alert my other family members.  I can also, after having kids, choose to have a hysterectomy and/or oopherectomy, which would eliminate my risk of ovarian cancer.  Get rid of it!
  2. I don't have the mutation, and we have no idea why I got breast cancer.
Not sure which of the two scenarios I'd prefer!  I guess there are positives and negatives of both, but I wouldn't necessarily call either good!  Cancer is cancer.

New Boobs Day Countdown: 36 days!